Bexley singer releases song in support of UK cystic fibrosis community

PUBLISHED: 07:00 30 May 2018 | UPDATED: 10:15 30 May 2018

Taylor Notcutt, from Wellingin Bexley, has released the new single. Picture: Cystic Fibrosis Trust

Taylor Notcutt, from Wellingin Bexley, has released the new single. Picture: Cystic Fibrosis Trust


Bexley-based vocalist Taylor Notcutt, who studied jazz voice at Trinity Laban Conservatoire of Music and Dance, has released a new single ‘Breathe With Me’ in support of the UK cystic fibrosis community.

The release of the song is very timely as the fight against cystic fibrosis is currently at a crucial point.

Taylor said: “I became involved in this project because a friend of mine, conductor Ben Knowles, knows a young girl who has cystic fibrosis.

“The girl is having a very difficult time and because a drug that can help her is not currently available in the UK, and her entire family may have to relocate to America.

“If you listen to the lyrics, they are asking people - the general public - to think about how difficult life would be if you had to struggle to do the one thing most of us take for granted every day – breathing.”

New precision drugs that for the first time, have the potential to lead to the disease becoming a chronic but manageable condition, rather than a life-threatening one, are being developed.

One of these is Orkambi, a precision medicine that nearly half of people with cystic fibrosis, including children aged six and over, could benefit from in the UK.

Orkambi is not a cure, but it has been found to slow decline in lung function – the most common cause of death for people with the illness.

It has also been shown to reduce chest infections requiring hospital treatment by up to 61pc.

Orkambi received its European license in November 2015, and in June 2016 the UK government agency the National Institute of Health and Care Excellence (NICE) recognised Orkambi as an important treatment.

They did not recommend the drug though, on grounds of cost-effectiveness.

This means it is unavailable to most people with cystic fibrosis across the UK.

In January, a petition for access to Orkambi gained over 100,000 signatures in just over 10 days and led to a parliamentary debate at Westminster Hall, attended by a high turnout of 60 MPs from around the country.

Taylor, who is from Welling, added: “Try breathing through a narrow drinking straw for just a minute, while pinching your nose – that will give you some idea of how bad this disease can get.

“If the public get some idea of having to live like that every day, then I am sure that they will want to help too.”

Download Breathe With Me in aid of the Cystic Fibrosis Trust at:


Welcome , please leave your message below.

Optional - JPG files only
Optional - MP3 files only
Optional - 3GP, AVI, MOV, MPG or WMV files

Please log in to leave a comment and share your views with other Bexley Times visitors.

We enable people to post comments with the aim of encouraging open debate.

Only people who register and sign up to our terms and conditions can post comments. These terms and conditions explain our house rules and legal guidelines.

Comments are not edited by Bexley Times staff prior to publication but may be automatically filtered.

If you have a complaint about a comment please contact us by clicking on the Report This Comment button next to the comment.

Not a member yet?

Register to create your own unique Bexley Times account for free.

Signing up is free, quick and easy and offers you the chance to add comments, personalise the site with local information picked just for you, and more.

Sign up now

Latest Bexley news

Thursday, November 22, 2018

Audiences shall go to the ball this Christmas as Cinderella comes to the Churchill Theatre for this year’s pantomime.

Wednesday, November 21, 2018

Plans for a new library and cinema in Sidcup town centre have taken a major step forward with the appointment of DRDH architects to develop the scheme.

Tuesday, November 20, 2018

Wildlife enthusiasts are calling for “embarrassing” fly-tipping that is blighting marshland in Bexley to be cleared up.

Monday, November 19, 2018

A father has been found not guilty of killing his 10-week-old baby.

Monday, November 19, 2018

Entrepreneur Jo Malone has said her success is down to making “people smile and feel good” as she was made a CBE by the Prince of Wales.

Saturday, November 17, 2018

A man who ran over two elderly women with his electric wheelchair was sentenced on Friday, November 16 at Southwark Crown Court.

Saturday, November 17, 2018

Wondering what the weather has in store for us this weekend? Watch our Met Office video forecast.

Friday, November 16, 2018

Christmas 2018 and the Northern Lights are welcomed to Bexleyheath on Saturday, November 17 with a spectacular mix of music and dance from stilt walkers to bhangra dancers, and acoustic artists to fire shows.

Most read news

Digital Edition

Read the Bexley Times e-edition today

Newsletter Sign Up

Bexley Times twice-weekly newsletter
Sign up to receive our regular email newsletter

Our Privacy Policy

Show Job Lists

Family Notices 24